Friday, May 20, 2011

Test Results!

Today we got Joshua's test results from the doctor. The doctor said that Joshua's stomach is not emptying food fast enough and therefore the milk is sitting in his stomach too long in between feeds. Because the milk is sitting in his stomach and is acidic, it is coming back up into his esophagus later as acid reflux. Fortunately there is a medication to help with this. I am not sure how it works exactly, but essentially it helps his stomach empty the food faster. This was one of the "easier fixes" the doctor had mentioned before this procedure, so I was pleased to hear that was one of the reasons and its just finally nice to have an answer.

The biopsy also showed that his esophogus had mild inflammation, which is why the doctor wants us to not only continue but increase his prevacid medication so the acidic stomach contents is buffered and it wont burn his esophagus. I cannot wait to get this medication and start it so Joshua can start feeling better and won't have to have reflux every day. Those of you who have had reflux can imagine how awful that would be! The pharmacy actually called us tonight and told us that they are unable to fill the prescription because it has to be made from a powder in a laboratory, so hopefully a local pharmacy can get it for us. We will know tomorrow morning.

In addition to his procedure this week, Joshua also had his 6 month check up this Thursday. He weighed in at 14 lbs and was just about 24 inches long! Using his adjusted age, which is 4 months, he is in about the 20th percentile for both weight and height. Using his actual age of 6 months, he is still in the 3rd percentile. He is still on the lower end of the charts...well actually he is actually barely on the charts, but he is making great progress because that growth line is almost vertical on the charts!

Joshua is still on full bottle feeds, but he is eating about 1/16 of a banana every day. That sounds like nothing, but he goes crazy for that banana. As for apples, they are still a little tart for his liking and his facial expressions were priceless. Too bad I didn't have the video camera going. I will have the video camera going next sunday, because on the 29th Joshua is being baptized! We are so blessed to celebrate Joshua's presence in our lives and in the church. We are looking forward to seeing family and friends for this special event.

The many faces of a baby....

Playful
Interested

Silly

Shy

Full of giggles

Content

Amused

Out for dinner at Rainforest Cafe...he loved the aquariums

Sweet chubby cheeks
 Joshua's daily routine...grab it, put it in my mouth, lose it, start again!
Grab it

Put it in my mouth

Lost it
Here are some recent pictures of Joshua! The countdown begins for summer... 11 days of school! Much love and thanks from Team Altman.

Tuesday, May 17, 2011

Glad to be back home!

We called Joshua a kitty because his tape looked like whiskers..he thought it was funny
Joshua did great at the hospital yesterday. His procedure started about 7:30 and he was waking up from the Anesthesia around 8:30. It took him a little longer than normal to wake up from the Anesthesia. The nurses said he was pausing his breathing causing bradycardias, but he eventually got past that and they let us go back to see him. I guess he was reminiscing about all the attention he used to get in the NICU when he would have bradys...he is very good at  getting attention!

Joshua was pretty groggy for a while and fell asleep in our arms for quite a while afterwards. They placed the pH tube in through his nose and down into his stomach which is why you see all the tape on his face. This was left in all night and they finally took it out the next morning. He was not a fan of it at all. They put his arms in those little slings so he wouldn't tug on it and pull it out. We should have the results from this pH monitor in a week.

The doctor said everything was normal from the scope. He showed us all the pictures he took as he navigated down his esophogus and through his digestive tract. He also took some small biopsies of the tissues in several areas to determine if there are any problems. We should have these results in a couple weeks. In the meantime, we will continue with his medication. Thank you for all the prayers!

Sunday, May 15, 2011

Packing for the Hospital...

Tomorrow morning is Joshua's procedure at the hospital. The actual name for the procedure is....ready......Esophagogastroduodenoscopy. It looks like a bunch of letter thrown together but its actually pretty simple, here is the breakdown:

esophago = esophagus = food tube
gastro = stomach
duodeno = duodenum = small intestine
oscopy = to look with a scope

The EGD, as doctors call it, helps to find ulcers, bleeding, infections, and many abnormalities in the esophagus and stomach. Hopefully they will be able to determine the cause of Joshua's constant reflux. The EGD uses general anesthesia, and because of Joshua's age and history with prematurity, he will have to stay overnight at the hospital after the procedure for observations. Therefore, I am packing some much needed things and probably some unnecessary things, but I really don't know what to expect.

Joshua's last meal will be at 12 midnight tonight, because he has to fast before the procedure. Normally he goes to bed around 9pm, but tonight we are staying up a little later so that tummy will be full for a few extra hours.  We have to be at the hospital by 6:30 and his procedure will start promptly at 7:30am. Please keep Team Altman in your thoughts and prayers. Much love from us <3



Monday, May 9, 2011

Happy 6 Month Birthday Joshua!

Peek-a-boo

I am 6 months old!!

Im silly

I use my feet like hands

Its my party and ill stick out my tongue if I want to

Joshua is 6 months old today! Its hard to believe he has been here for 6 months, and been home now for 4 months. Yesterday was such a wonderful Mother's Day. I am so thankful to be a mother to my little 2 pound miracle! Enjoy the birthday pictures!



video

Saturday, May 7, 2011

Joshua's First Procedure...

Today we had an appointment with a gastroenterologist. Joshua has had moderate reflux since he was in the NICU and it has continued since he has been home. He has been on medication to help with this for almost 5 months now and unfortunately we haven't seen a huge improvement. After talking with the doctor she told us what we needed to do in order to get some real answers as to what is causing this. On May 16th, Joshua will undergo a procedure in which they send a small camera down his esophageal tube and into his stomach. They will take multiple pictures along the way, focusing on the sphincter that holds the stomach contents back from leaking into the esophogus. Unfortunately the procedure requires that he is sedated, so this will be his first time to have anesthesia. The actual procedure only takes about 30 minutes, but mommy can't go in the room during the procedure, so I'm most worried about leaving him. After taking him home from the NICU, I guess you could say I have had a bit of separation anxiety...can you blame me?  The doctor should know of any major problems right away as he is navigating down his digestive tract, and he will talk with us after the procedure to let us know if any further procedures or surgery is necessary to correct the problem.

In addition to this, they will insert a tube through his nose down into his stomach, similar to what he had in the NICU. The other side of the tube has a machine attached, and it will read the pH of his stomach at certain times of the day. When he has reflux, we will push a button on the machine, and it will make sure to record all his physiological changes at this time. He will wear this for 24 hours, then we will simply pull out the tube from his nose, and take the machine back to the hospital where they will process the data into meaningful information.

There are many different causes to reflux, some are easily treated with medication and usually things they grow out of, but some can be major and require surgery.We ask that you continue to pray for Joshua, for his quick recovery after the procedure and pray that surgery is unnecessary at this time. Your uplifting prayers make all the difference in times like these, and we appreciate all the love and support. We will keep everyone updated. Much love from Team Altman.